Welcome to the Home of a Medically Complex Child Wreaths aren’t the only thing that decorate my front door, we also have two very important signs that greet all who visit our home. The first is our “Oxygen In Use” sign, and the other is a set of instructions for all...
Honestly, the helmeting process has been tougher on this mama than on Rowan! I’ll never forget the first time I cuddled him with the helmet on; it felt like my warm, squishy baby had turned into a cold, hard plastic robot. Out of all the things he’s been through, surprisingly this was one of the hardest on me. It’s because it’s a big, clunky outward reminder of all the things we’ve been through. It’s something that could possibly have been prevented, especially had he not been intubated for so long. The helmet was just one more “thing” to add to the list of my responsibilities and monthly appointments.
Whether or not a mother is in my situation, I think a baby registry is a list of hopes and dreams for all the things you’ll do with your baby when he comes home. You imagine baths with the plastic tub that fits in the kitchen sink, swaddling him with the blanket that is too expensive but worth it because it’s so soft, and laying him down for the night to sleep peacefully in the perfect crib.
On a recent trip to Las Vegas, Alex and I stumbled upon an Oxygen Bar. There sat an entire family of 5 on bar stools all hooked up to nasal cannulas laughing and taking selfies. I found it hilarious that people found oxygen support to be a tourist attraction!
Rowan did not go on vacation with us, mainly due to the fact that he’s still on oxygen. It would be possible for us to take him, but I don’t think it would be fun for any of us, including Rowan.
“How much longer will he be on oxygen?”